Hi @jenniferemery, you'll notice that I removed your personal phone number. Connect is a public forum. We recommend sharing personal contact information using the secure private message function.

I’d like to underline the benefit of sharing in the group discussions. By posting in the discussions, you benefit from the knowledge and experience of many members and they benefit from the experiences you share.

Getting this diagnosis for your husband must come as a shock to him, but perhaps not to you. Had you been seeing signs? What help is being offered to you and your husband since getting the diagnosis?