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Gyne Cancer (ovarian) Foregoing Treatment

Gynecologic Cancers | Last Active: Aug 18 4:16pm | Replies (15)

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Profile picture for Carrie @katycot

I am wondering what is driving your decision. Is it because you feel the treatment may be too difficult, or perhaps you think the survival percentages are too pessimistic?

I had 3c in 2004, took chemo and have not had a recurrence until this year. I jus finished chemo for recurrence. In both cases chemo was manageable, and I would say this time it was far easier than before even though I am much older, mostly due to advancements in side effect management.

There is also immunotherapy options which may be something you can consider. I am taking Avastin as maintenance now that chemo has concluded.

I wonder if you have had your surgery, and if it was performed by a gynOnc specialist with lateral incision, or standard hysterectomy. If the standard was performed I strongly suggest you seek multiple opinions as I believe your risk of recurrence is higher.

If you decide to not take treatment, I hope you will be having routine scanning and CA125 tests; but these still could miss a metastasis.

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Replies to "I am wondering what is driving your decision. Is it because you feel the treatment may..."

@katycot how did you discover your recurrence? I have recently finished my treatment and I seem to be clear. Wondering about asking for CT sans, blood work to monitor CA125 and HE4. Thank you for any guidance