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Diagnosed with 5 mm tumor in pyriform sinus

Head & Neck Cancer | Last Active: Aug 14, 2023 | Replies (28)

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@kecm

In 2020 cancer in my Pyriform Sinus (a large tumor) and in the lymph nodes in my neck were discovered, but first, I had the terrible sore throat and earache that you described. I learned that this is the first sign of throat cancer. The lymph nodes in my neck were hard and about the size of ping-pong balls and then smaller. I told my PCP that I knew I had cancer, but she wanted me to wait (I don't know why, but this was a bad call).
As it turned out, due to COVID, the hospital was not able to see me in March, once my PCP referred me, and I had to wait until June to begin treatment (waiting 6 months after I knew). I then got the feeding tube and began chemo and radiation at the same time. The treatment was very difficult - unable to swallow or speak, as you mentioned, and the feeding tube was no fun. The side effects of these treatments did not dissipate until the following June, 2021, however I still have the sore throat, difficulty with swallowing, have to clear my throat every few seconds if I am talking, and very little saliva in my mouth.
Then, this past July, a PET scan showed that the lymph node cancer came back and had metastasized to both lungs. I am now having Immunotherapy, IV supplement sessions, a supplement called Valasta, and I am seeing someone who had a device called Firefly. It is even more serious now, but I am not willing to again go through the side effects of chemo and radiation, which were debilitating. I want to at least be able to enjoy my life while doing these treatments, and I hope and pray that the treatments put it in remission.

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Replies to "In 2020 cancer in my Pyriform Sinus (a large tumor) and in the lymph nodes in..."

Thank you for sharing your story with us, you have been through so much! I am so sorry you have to get back into the fight. Just like @thomason I also hope and am praying you will conquer this disease with Immunotherapy/Valasta, because chemo/radiation side effects are devastating. Please, keep us updated!