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Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)
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@jfannarbor, There are conditions that can mimic PMR and it's not uncommon to have PMR with normal CRP and SED rates from what I've read.
-- Diseases that mimic polymyalgia rheumatica (PMR):
https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica
-- Polymyalgia rheumatica: Look before you leap:
https://bpac.org.nz/bpj/2013/june/polymyalgia-rheumatica.aspx
If you do have PMR, too much exercise can elevate the pain levels, at least it has when my PMR was active. I know you've mentioned seeing several different rheumatologist but have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic?
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Responding to @jchnbishop. Three of the four rheumatologists were at the University of Michigan Hospital system. I have also been to U of M muscular dystrophy clinic. I am not sure how my extensive exercise schedule affects my condition. I am sure it complicates the Dx since MDs tell me that I am at the 99th percentile with reguards exercise. I honestly feel that exercise makes me feel better.