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Have you tried the new Protocol 525 product for neuropathy relief?

Neuropathy | Last Active: Nov 20 6:43am | Replies (299)
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@johnbishop

Hello @mct, Welcome to Connect. I don't really have an answer for you other than one of the ingredients of the protocol is similar - acetyl-l-carnitine.

"Acetyl-L-carnitine (ALCAR) may help reduce the severity of chemotherapy-induced peripheral neuropathy. High-quality evidence is needed to evaluate whether ALCAR may benefit the treatment of peripheral neuropathies associated with diabetes or caused by antiretroviral therapy."
-- https://lpi.oregonstate.edu/mic/dietary-factors/L-carnitine

Here's some more info that explains why it's part of the protocol.
-- The Therapeutic Effects of Acetyl-L-Carnitine on Peripheral Neuropathy: A Review of the Literature:
https://www.naturalmedicinejournal.com/journal/therapeutic-effects-acetyl-l-carnitine-peripheral-neuropathy-review-literature
Do you mind sharing a little more about your neuropathy diagnosis and how long you've had it?

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Replies to "Hello @mct, Welcome to Connect. I don't really have an answer for you other than one..."
mct | @mct | Nov 9, 2022

Hi John,
Thanks for the quick response. I've been finding it hard to discover the rationale for the various 525 ingredients. Individually they have each (I think) been the subject of limited clinical trials and each shown some efficacy. But most trials have been regarding PAIN, and many were confined to diabetic neuropathy, not specifically treating the loss of sensation in idiopathic sensory neuropathy.
I'm about your age (72) and have had a fairly stable case of polycystic kidney disease for a few years. Otherwise I'm fairly healthy and and active.
The neuropathy started in early 2022 with numb toes and started an upward progression in June/July. It has now affected my hands and also my legs to above the knees. My calf muscles are now starting to feeling stiff if I walk for more than a mile. Not sure if I'll be able to get back to the tennis courts next summer.
Tests for diabetes proved negative but I haven't yet been tested for any other underlying disease.
I had previously thought the symptoms might be covid related but I see that recent medical reviews suggest that the link is questionable.
The 525 protocol (ALA and ALCAR in particular) seem my best bet for now to halt the progress of the neuropathy. I've been taking a dozen or so tabs/caps for about 2 weeks so far. I'll post again if I see any improvement n the next few weeks.

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