← Return to Mayo Clinic Pain Rehab Center (PRC) - What’s Your Experience?

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@chelle2001

Hi Rachel,

Thank you also for your reply. What you shared was helpful for me in not being as fearful of the weaning off meds process. I am very interested in the program and do think that it would be a good fit. Basically, what my doctors have done in treating my chronic pain for the past five years is not working. I've instead continued to get worse. This is not a knock on my doctors. For some people, medications work great. But for me, I react to medications, so they may help me to some extent, but they also make things worse (by causing more pain). The PRC program offers a totally different approach to treating chronic pain and this is what I really need. I would love to be able to eliminate or at least reduce some of my medications. I feel like a walking medicine cabinet and I hate that!

However, I'm not certain if I will be accepted into the program. As I mentioned, they wanted me to work on adding more foods into my diet before being considered for the program. I've tried over the past few weeks, but when I've tried to add a new food in (I'm choosing bland foods and starting with the tiniest amount), I flare up with pain that's unbearable. It's been a discouraging experience. I have sought out help from my doctors, counselors, nutritionists/dieticians in the past as this issue has been going on for the past five years. My doctors' solution is to add more meds or increase the meds I'm on. I did CBT with a counselor for three years. It did help but was not enough to solve the issue. I've also met with a nutritionist and a dietician. They know how to give me a plan for introducing foods, but are at a loss for how to handle the flare ups of pain that I suffer when I do. I'm an oddity because most people don't react to food unless they have food allergies, which I don't have. I now understand that my reactions to food are part of the CSS. I reached out to the PRC today to see if they will consider taking me as a patient even though I haven't been able to add more foods back into my diet. I really believe that we have to tackle the CSS first before I'm able to successfully add more foods back in. We'll see what they say (fingers crossed).

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Replies to "Hi Rachel, Thank you also for your reply. What you shared was helpful for me in..."

Hey there- @chelle2001. Given all you've just expressed, you seem to have a pretty solid handle on understanding CSS and what your best path forward is. Recognizing that can be the first step. Good for you!

Regarding the past 5 years of your treatments, you're right Doctors have their lanes of specialized knowledge. Most times they do the best they can with what they have, know or are willing to expand upon.

I also experienced hyperalgesia which is when pain is intensified by medications, mainly opioids, and causes an adverse reaction. It took a while to come to grips with that one.

Please remain persistent with PRC as you are doing. Express all that you have here to me on Connect and stay in communication with them. Perhaps emailing a follow up with your thoughts, wishes and intent in addition to phone conversation will be helpful.

Stay diligent and keep the faith. Please let me know how things progress. 🤞🏼🤞🏼🤞🏼

PS: When replying to a specific post, hit the blue "Reply" button plus tag the person you wish to see your response by including their "@title". For example @alh123. This way they know your reply is meant for them and they will receive a notification, if their notifications are turned on. After tagging once, you can just hit reply within the continued conversation.