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Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Nov 29 9:52am | Replies (169)

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@frattmaa

I feel the same way. I use to be pretty funny and I had so many passions, like, gardening, fishing, hunting, raising husky’s and malamutes, cooking, roller blading, hockey and being with my kids. I can’t do any of my passions other than my dogs ( I can feed them and play with them but the walks stopped 2 years ago). I’m not funny or fun to be around. Sometimes when I have friends over for dinner I have to excuse myself due to pain. You are not the same person. Neuropathy controls what and where and if we can do anything. It’s a terrible disease.
However there are things that may help. Getting a good nights sleep even if you have to take Malatonin or Benadryl to sleep. Try to eat well and keep up with your personal hygiene. You my not feel well but you will at least look good. Forget about getting help from friends and family because “ you look normal”! I think if we turned green and had boils all over our body we may get sympathy or empathy.
You will have good days, weeks and even month. And you will even question if you’re really that sick or sick at all. Then BAM!!! It come back with a vengeance. People think you’re ok because they saw you shopping and laughing. It’s hard even for physicians to grasp this.
Do the best you can when you can. It will only get worse as time goes on. You have to be your best advocate and best friend.
I hope some of what I said helps.

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Replies to "I feel the same way. I use to be pretty funny and I had so many..."

What you said helps. Thank you for explaining where you were before and now today. I thought I was the only one that had good and bad days. Sometimes it really is hard to be dining out with friends and your neuropathy kicks in. I like your positive out look. Today is a good day so enjoy it. Maybe tomorrow will be too.
Living with it is an adjustment only we know.
Best of luck.