5yrs of terrible pain

Posted by sprinrosa64 @sprinrosa64, Nov 5, 2022

After TKR I have been stuck with terrible pain with no answer , I am always searching for an answer and was wondering if anyone has had experience with Calmare or Scrambler therapy

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@sprinrosa64 You might be interested in these discussions about Central Sensitization of pain. One of my fellow mentors, Rachel @rwinney started these discussions and she has completed the program at Mayo about dealing with chronic pain. It seems like you have been though a lot of procedures trying to reduce your pain.

-- Chronic Pain- Central Sensitization - please share your stories:
https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/
--Chronic Pain- Mayo Pain Rehabilitation Program:
https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/
Another discussion I could recommend is
— Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
MFR is the process by which a therapists stretches out overly tight tissue and scar tissue. With a knee replacement, it is important to try to maintain alignment of the pelvis and body, and MFR can help achieve that with gentle stretches. MFR has helped me a lot with thoracic outlet syndrome which is a nerve compression problem that happens in the shoulder.

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I'm not familiar with this that you mentioned. Is that only for certain areas of pain and can it be done for the neck?

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@lorimarie

I'm not familiar with this that you mentioned. Is that only for certain areas of pain and can it be done for the neck?

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@lorimarie If you were asking me, myofascial release can be done most anywhere on the body and it can help the neck a lot. I have done this with my therapist for spine related issues, after spine surgery, and for thoracic outlet syndrome. It is a way to stretch out overly tight tissue and get the body moving again and in better alignment.

The Mayo Clinic program is about general pain in the body which can be related to a failed surgery, or procedure that leaves a patient with extra pain.

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Hi there @sprinrosa64, I've seen you around these neck of the woods for a while now. I'm sorry that you've been left with distressful circumstances since your knee surgery 5 years ago. I understand what it feels like to be frustrated by losing parts of your physical abilities and the spiral that takes on your emotions, behaviors and overall quality of life.

First, if you have not yet watched Mayo Clinic's Dr. Sletten speak about Central Sensitization Syndrome (CSS), I suggest you watch and learn, not only the science behind your chronic pain, but also the "cycle of pain" that one can become trapped in as a result. Here's the video -

Dr. Christopher Sletten discusses Central Sensitization -


You definitely sound like someone who is at wits end and continues to look for solutions. I don't have any experience with Calmar pain relief with scrambler therapy, but from what I've learned it is FDA approved and is proven to reduce pain in some patients. Here is more from a Connect discussion regarding the therapy -

- https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/

My belief is that each person has to satisfy themselves with their course of action in combatting chronic pain however, if or when that course leaves you feeling exhausted, like every band-aid in the word is just not enough, then maybe it's time to re-adjust expectations.

I hope this information has been helpful for you. I am curious to know your thoughts on the CSS video and what direction you might be thinking of heading in next, whether that be trying scrambler therapy or perhaps visiting Mayo's Pain Rehabilitation Center. Do you wish to share how you've been handling day to day life with your chronic issues? Do you get exercise? How is your diet and sleep hygiene?

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I am unsure where to post this, but perhaps volunteers Rachel and Jennifer have some feedback about the following list of books recommended to me by Kaiser Regional Chronic Pain programs:

• Buddha’s Brain: The Practical Neuroscience of Happiness, Love,
and Wisdom by Rick Hanson, PhD, and Richard Mendius, MD
(available for purchase in the KP Health Education Department)

• They Can’t Find Anything Wrong! 7 Keys to Understanding,
Treating, and Healing Stress Illness by David D. Clarke, PhD

• Writing to Heal: A Guided Journal for Recovering from Trauma
and Emotional Upheaval by J. W. Pennebaker

• The Little ACT Workbook by Michael Sinclair, PhD

• The Mindful Self-Compassion Workbook: A Proven Way to Accept
Yourself, Build Inner Strength, and Thrive by Kristin Neff, PhD, and
Managing Your Pain Participant Workbook 130
Christopher Germer, PhD

• The Brain’s Way of Healing by Norman Doidge, MD

• Living Beyond Your Pain: Using Acceptance and Commitment
Therapy to Ease Chronic Pain by JoAnne Dahl, PhD, Tobias
Lundgren, MS, and Steven C. Hayes, PhD

• Managing Pain before It Manages You by Margaret Caudill, MD,
PhD

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Anyone In chronic pain after taking cipro or levafloxin

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@4846

Anyone In chronic pain after taking cipro or levafloxin

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Yes, lets share our experiences!

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Yes 2014 10 1000 mg pills cipro.
Chronic issues ever since head to toes.

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FDA reports side effects outweigh benefits for this class of drugs- fluoroquinolones. Damage to central nervous system, muscles, mental health etc. I have heard people talk about side effects that altered their life. I took these drugs often for a few years and developed Achilles tendinitis. Many physicians still are not aware of the potentially dangerous side effects. https://www.drugwatch.com/news/2016/05/16/fda-black-box-warning-for-levaquin-cipro-antibiotic-risk/

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