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Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Jul 23 5:43pm | Replies (110)

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@jrt26

@Iphillips. I also had numbness on my face that started on the right side above my cheeks then slowly travelled towards my forehead and then to the left side of my face. It went away gradually as well after the 4th and final rituximab once a week infusion. I started to feel ‘normal’ again probably two weeks after the last infusion back in July 2020. There is hope. I understand how he feels since we look okay from looking at us but we don’t feel well at all. The balance issue especially when walking or standing up is scary too. I tripped and fell a few times. Be careful and listen to your body when tired get as much rest as possible. I kept busy doing some brain games on line. I downloaded a free version of Lumosity and also like crossword puzzles and sudoku. Take care. Contact me anytime. Keep us posted on your husband’s March appointment.

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Replies to "@Iphillips. I also had numbness on my face that started on the right side above my..."

Will keep you posted! Thank you for your words - things I need to hear. Thankfully he has a job where he can work at home if he needs to and still keep up with all that he's responsible for.