I'm so upset looks like the Specialist who have been saying for the last 10 years that nothing has changed. But she would plead to me mom I know my body by now and I know I'm still not feeling right.
Come to learn yesterday after a recent MRI that the dura in her brain has hugely increased in thinking and the thinking in her spine is back but is now on scar tissue and resembles the same as her initial symptoms in 2010.
Please make sure your doctors are reading your full reports. She has scheduled MRIs every 6 months but recently of her complaining about her symptoms it has been every 3 months.
The report in the first lines said no changes from the last but when your read the full reports it has been increasing for quite some time but they failed to compare earlier results.
I'm so scared. She is so stong and so amazing. So optimistic and I have to be too but as a grandma and a mom I'm very scared she is only 25 now.
They are completing more tests and making changes to her medications.
I'm so thankful for the drs that took the time to sit with her and show her this yesterday. And for them now wanting to help her in her fight. They are now willing to do a referral to the Mayo Clinic for her as well.
You are all amazing people ❤