You are not delusional. You have to have hope. I live in Ohio as well and chose the ClevClinc because they are so well known and listed with the PanCan organization. Very negative vibes after my stage IV diagnosis in May. Researched more on my own and there are very few cancer centers specific for the pancreas. CC is not one. I have since been in touch with John hopkins in MD, which is a pancreatic cancer center and even tho I receive chemo locally in my home town, my local oncologist and JH oncologist consult with one another. I will also be contacting Mayo as I have been hearing so much about Dr Truty. MY goal is surgery eventho CC said I am not a candidate. Articles by Dr. Truty describe surgery for cases like mine--I am healthy and have had no symptoms and no health issues leading to this diagnosis. Non smoker, occasional social drink with family (altho not any more since it no longer tastes the same), no history of cancer in my family. And so far folfirinox is working.

If I accepted CC's opinion, I would have given up. Don't accept one opinion--go to specific Pancreatic cancer centers for second opinion. The CA19-9 is a simple test--he should have received results right away and scans every couple of months. Keep advocating for him!