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Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Jul 23 5:43pm | Replies (110)

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@jrt26

@Iphillips May I asked what part of the dura or brain is affected by the inflammation/Pachymeningitis? Your husband may need to see a neurosurgeon instead that specializes in the brain stem or if anywhere close to the cranial nerves. I was also placed on prednisone 60mg daily taper down for a few months. However, the symptoms and inflammation came right back soon after stopping prednisone. Due to my type 2 diabetes, the team of doctors decided on Rituximab Infusions. So far I’ve had 4 sets on infusions since 2016 and that seems to help for at least 6-12 months. My cranial nerve 6 was affected which permanently moved my left eyeball inwards which caused the double vision. It corrected itself after about 8 months. Neuro Opthalmalogist is also a good next step. I had a neurosurgeon because they first suspected it to be a small meningioma in the cavernous sinus brain stem area. So I was first treated with gamma knife procedure then the growth/inflammation returned after 5 years. Hope some of this information helps you and your husband.

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Replies to "@Iphillips May I asked what part of the dura or brain is affected by the inflammation/Pachymeningitis?..."

Thank you for your information! I am glad to hear that the Rituximab infusions have helped you. The inflammation in my husband's dura seems to affect his left side the most. He feels as if he will fall to the left or backwards when standing. He also has had some numbness in the left side of his face. Waiting patiently for our appt in March.