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@concerneddaughter

New to this forum but looking for feedback from others who have received Jelmyto for low grade UTUC. My 85 year old mother received 6 treatments. Treatments 1-3, went relatively smoothly with minimal discomfort after the procedure but the last 3 have been quite difficult. She has had a UTI twice, and continues with intense abdominal and flank pain and a complete lack of energy. Last week she had an ultrasound and the doctor said her kidney was swollen. The dr prescribed Flomax originally but has now scheduled for her to have a stent inserted in the coming week. Her urologist is not from a cancer center or a teaching hospital so I am concerned the lack of administration familiarity may have been a factor in the intensity of the side effects or worse yet created a new trauma to her kidney from the frequent procedures. The urology practice seems unsure of next steps and their lack of urgency concerns me, especially for a patient that is 85.

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Replies to "New to this forum but looking for feedback from others who have received Jelmyto for low..."

@concerneddaughter — How is your dear mother doing? This forum has been silent for a long time. I hope everyone is OK.