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Tested postive for Lynch Syndrome: Anyone have this?

Cancer | Last Active: Jan 19, 2023 | Replies (40)

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@colleenyoung

@bevers89 and @nrocpop, it's a double-edged sword isn't it? You have a lifetime of close monitoring for cancer and all the cancer screenings because of Lynch. But you have a life time of close monitoring and cancer screenings. So many people don't do the screening that are effective and available for some types of cancers. I bet you never miss an appointment!

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Replies to "@bevers89 and @nrocpop, it's a double-edged sword isn't it? You have a lifetime of close monitoring..."

Colleen and @bevers89 Right. Lynch is a rotten egg in the carton of life. I am not sure how it works, but I have a bunch of stuff which respond to the name of Lynch Syndrome. Anyway, If I am fortunate, I will find a doc before I am 100 years old who has their stuff together and can deal with Lynch. But there is always something new coming along. I just learned this morning that a couple of my mutations came on because of bad water some time long ago, probably around 50-60-80 years back. PPPHHHHTTTTT!!!! oldkarl

I never miss an appointment! However, I wish insurance would pay for all of these cancer screenings.... Just because I am not "of age" for cancer screenings they all come out of pocket for me :/.