Hi @scaredmomma, I see you are from Canada. In some cases, when treatment options not available in your province, your provincial healthcare coverage will pay for out of province access. You may wish to contact Mayo Clinic to find out a) if Mayo Clinic can offer treatments that differ from the treatment your daughter is currently receiving and b) if your provincial plan would cover out of province care.

One thing I know for certain is that asking costs nothing. Please contact our Canadian information services at Mayo Clinic https://www.mayoclinic.org/canada