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Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Jul 23 5:43pm | Replies (110)

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@helena49

Is she on steroids? I was on dexamethasone for 10 months. After my children insisted the docs at Baptist take me off them, I began to improve. I could not walk, my feet and legs were sooo swollen, I still have no memory of several months, I had to wear a diaper, I could not bathe myself or brush my teeth or hair. My hair thinned and came out..My hearing has gone south, but my vision has improved. My gait is not what it use to be, but most of the time I walk well. I no longer fall. I always fell backward..always. I can no longer ride a bicycle or go for long walks. I still forget things and have anger issues. I also bruised easily..not as much now. However, I have never had a bad headache. Sometimes, now my head feels as though there is pressure on the left side and I become very dizzy. However, I find if I lie down and put my feet up, it goes away in about 20-30 minutes. My last MRI in July showed vast improvement...the steroids were far more damaging to me than Pachy. I will never take them again. Keep us updated on your daughter...Prayers helped me and I will pray for your family.

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Replies to "Is she on steroids? I was on dexamethasone for 10 months. After my children insisted the..."

Yes she has been on all sorts of medications but yes now she is on the steroids and they are weeining her down she is not doing well on them either. She is now waiting for I believe its called Imitrex infusions. Thanks for your reply. You are all strong and amazing people.