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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@detc

I developed peripheral neuropathy in December 2021 after my first Moderna booster at the end of October 2021. At the time of onset, I could barely walk. As of early October 2022, I was walking and hiking three miles a day and was completely off of Gabapentin. On Thursday, I had an EMG test. The results were better than I could have imagined. My nerves are completely healed. The health of my nerves is excellent. I’m truly grateful for this turnaround. I feel very blessed to have come through this experience, back to my former good health. My doctor believes that my neuropathy was likely caused by an extreme inflammatory response to an overreaction of my immune system to my first booster. She has suggested a short term prescription for steroids if I have any future, immune response overreactions to medical conditions or at the first sense of a recurrence of any tingling or numbness. The suppression of the immune response by the steroids might keep my immune system from attacking my nerves again. The sole reason that I’m posting this is to let people know, that in some cases, healing is possible. I realize that everyone is different and that not everyone will come through this the way I have, but when I read of the frustration and desperation from so many similar cases, I hope that maybe this will help someone to feel a little better. To feel that there might be hope for resolution to their situation. I was extremely fortunate to have a wonderful doctor who heard me, believed me, and has done all that she can to see me through to this day. She gave me hope from the day I met her. We have a plan in place for any future problems. Knowing that and having such good results from the EMG gives me peace of mind. I wish that for all of you.

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Replies to "I developed peripheral neuropathy in December 2021 after my first Moderna booster at the end of..."

Hi @detc, You will notice that we moved your post to an existing discussion on the same topic here so that you could connect with other members like @dortj, @cue and others who are discussing the vaccines and neuropathy symptoms.

-- COVID vaccines and neuropathy
https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

You might be interested in seeing the treatments that have helped others with neuropathy symptoms on the Foundation for Peripheral Neuropathy website here: https://www.foundationforpn.org/treatments/

That is great! Did you do anything besides gabapentin that may have helped with your neuropathy? I stopped taking gabapentin because of the side effects and found that it wasn’t helping with my neuropathy anyway. My neuropathy has never went away since my first and only Pfizer vaccine 4/21. It does get better here and there but always comes back just as bad and sometimes worse.

That is such good news that you are doing so well after your vaccine injury! You are the first person I have seen to report complete recovery that includes recovery of a normal EMG. My symptoms are greatly improved but there was no improvement in the nerve damage according to my most recent EMG 5 months ago. I'm now hopeful that my next EMG will show improvement. Thank you for sharing your good news!
Did your doctor discuss a possible resurgence of your inflammatory reaction to the spike protein if you should get Covid? Would you try a short course of steroids then? My nerve damage from the vaccine is also likely due to an inflammatory autoimmune reaction.

Who is your doctor and is she/he taking new patients?