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Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Oct 4, 2023 | Replies (104)

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@jrt26

@scaredmomma
I’m so sorry to hear how much pain your daughter is experiencing. I only thing that worked for me was Rituximab Infusions. It last in for about 6-8 months. I am even able to wait about 10-12 months for the next set of infusions. Please let me know if you need more information. Sending your daughter and you healing thoughts and prayers.

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Replies to "@scaredmomma I’m so sorry to hear how much pain your daughter is experiencing. I only thing..."

Yes this is what they are starting her on now hopefully by next week. Thank you for the input. We're just praying it helps. Good to know that you have had some success. This is good news for both of you. Stay strong you are amazing.