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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
My problem with neuropathy and piano playing has not been pain, it's that I can't feel the pedal and my foot slips off without my knowing. I've been experimenting with shoe additions that hold my foot to the pedal. I have been taking Simvastatim for years and now I hear that statins can cause neuropathy, which my doctors never mentioned. Maybe they felt my dosage was not high enough to be a cause. Oh well. Love to hear from anyone who has dealt with this problem.
Replies to "My problem with neuropathy and piano playing has not been pain, it's that I can't feel..."
@alces. You bring up a good point. Over the past 5 years I have tried out many new meds and no drs have said anything about possible side effects. I don’t think drs are doing this anymore. Am I missing something?
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Hello @alces, Welcome to Connect. Sorry to hear your neuropathy symptoms are making it difficult to play the piano. There is another discussion on the numbness only symptoms that might be helpful.
-- Neuropathy: Numbness only, no pain:
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
My doctor also wanted me to go on simvastatin but since I had been researching possible causes of my neuropathy and learned that statins can induce neuropathy I decided to opt for natural ways to work on lowering my cholesterol numbers. I think it's always best to discuss alternatives since there are cases where your life could depend on the medications.
A few years ago I saw a product under development at the Minnesota Neuropathy Association meeting. It was for people with diabetic neuropathy but could actually help others with feet feeling issues. Here's the website which might be worth discussing with your doctor.
-- Walkasins Device: https://rxfunction.com/our-product/
Have you done any research on items that may help?