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cgrammie2 (@cgrammie2)

pachymeningitis

Brain & Nervous System | Last Active: Jun 20 12:01pm | Replies (85)

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@tracyb

I was diagnosed several years ago, but have never been treated as followup MRIs showed no progression and I want to stay away from the standard treatment by steroids. I have mild headaches, neck stiffness, blurry vision in one eye and hearing loss, but none of it is debilitating as of yet. I do have a question about the rituximab. I understand it has been effective. Does insurance cover it? Cost? Also does anyone know if it can be used without failing with steroids first?

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Replies to "I was diagnosed several years ago, but have never been treated as followup MRIs showed no..."

@tracyb I have PPO insurance and they first denied rituximab because they wanted me to try other medication like azathioprine, however, my doctor spoke to the insurance provider due to my type 2 diabetes, other medical issues and the extent of the Pachymeningitis which spread throughout the dura (right and left side). If your doctor can give the insurance a good case on starting with rituximab then it should be approved. If not, I also had called Genetec directly and they were willOmg to help pay or even pay in full If you qualify. The drug cost over $15k. I’m not sure how much the hospital charges for their cost of the infusion. Hope this helps.

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