← Return to Pachymeningitis: Anyone else?

Discussion

Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Jul 23 5:43pm | Replies (110)

Comment receiving replies
@tracyb

I was diagnosed several years ago, but have never been treated as followup MRIs showed no progression and I want to stay away from the standard treatment by steroids. I have mild headaches, neck stiffness, blurry vision in one eye and hearing loss, but none of it is debilitating as of yet. I do have a question about the rituximab. I understand it has been effective. Does insurance cover it? Cost? Also does anyone know if it can be used without failing with steroids first?

Jump to this post


Replies to "I was diagnosed several years ago, but have never been treated as followup MRIs showed no..."

@tracyb I have PPO insurance and they first denied rituximab because they wanted me to try other medication like azathioprine, however, my doctor spoke to the insurance provider due to my type 2 diabetes, other medical issues and the extent of the Pachymeningitis which spread throughout the dura (right and left side). If your doctor can give the insurance a good case on starting with rituximab then it should be approved. If not, I also had called Genetec directly and they were willOmg to help pay or even pay in full If you qualify. The drug cost over $15k. I’m not sure how much the hospital charges for their cost of the infusion. Hope this helps.