GERD issues
I am 22 years old. I don't smoke or drink. Growing up I can remember having a slight hoarse voice in the morning if I ate to late at nights. But never anything too miserable. It would go away within a hour after drinking water.
March 2011 on a Wednesday. I woke up with a hoarse voice that never went away. After a few weeks I started to get slightly worried so I went to my family doctor. I went 3 times over a course of 5-6 weeks and they had no idea after giving me multiple steroids and antibiotics that did nothing. I also had no pain in the beginning my throat didn't hurt at all. My only symptom was the voice. So they sent me to a throat specialist. (Audiologist) He did a throat endoscopy and told me I have GERD. He prescribed me omeprazole 20mg once a day. I changed my diet. I stopped eating hours before I went to sleep. I have never been a soda drinker, I am not a fan of fatty foods. The fattiest thing I like to eat sometimes is chocolate.. So I gave that up. I don't eat big meals. I have always been a snacker. But I didn't seem to get that much better so back as planned in 6weeks. He told me to start taking it twice a day. my throat started to hurt and become really sore around this point. I would wake up in severe pain, and it would hurt through out the day. I would take 2- 20mg omeprazole and I would also drink baking soda mixed with water whenever I couldn't handle the constant burn anymore.. I wouldn't drink the baking soda/water at the same time as taking the omeprazole. I made sure I did that hours apart from one another.
So about 10-12 weeks later my symptoms got much worse. It wasn't working. Nothing seemed to work.
So I went back to the doctor. They did another endoscopy and my throat is more swollen than the first. It's starting to swell up even higher around where my thyroid is.
I started having chest pains and it has become hard to swallow anything.
My heart rate gets insanely high in random occasions.
I feel a knock/thump whenever I swallow.
My throat is always hurting.
I am nauseous when I eat.
It's painful to eat or drink anything; I have lost almost 30lbs because of it.
So I have had a endoscopy twice now,
I got a barium swallow done and he told me I have acid reflux. probe test done,.,Blood work....How many more test need to be done?
I haven’t heard my voice in a year now. It's to the point where I am becoming depressed and I ignore talking to people. I ignore hanging out with friends, because if I talk to much my throat becomes incredibly sore to the point where I won't be able to sleep. I can't yell or whisper. I have one tone. If I yell then I’m pretty much out for the rest of the day because my throat hurts so badly.
I am thinking about going to the Mayo Clinic. Has anyone else been through this? Do you think they will be able to help? Could it be something else?
Im desperate.
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Avoid coffee. caffeinated tea, chocolate, also avoid alcohol and spicy food. Chew your food very well, don't eat a few hours before bedtime... I don't know what the EMI is, try what the US doctor suggests.
No soda, booze, don’t eat 3 hrs before bedtime. Raise your head board on your bed 6”. No fried fatty foods. I get scoped next year for my Barretts. I also have silent gerd.
Is there any evidence that albuterol and/or Trelegy can contribute to GERD?
Mayo Clinic did a lab test on me, and determined I am a rapid metabolizer of PPI's, which didn't work. I was put on rabeprazole (Aciphex), which helps. but I still can get heartburn -- sometimes no rhyme or reason. I was told to get Gaviscon Extra (from the UK) or Reflux Gourmet, which is the same thing they say, but without artificial sweeteners. Neither Gaviscon or Reflux Gourmet helps. I was told if that doesn't help then take a Pepcid AC. Again, when I tried it once, it didn't help. When I get heartburn, I just have to lay off eating for a day or two until it subsides. I still keep the head of the bed raised & lay on two pillows. I had many GI tests at Mayo, which also showed I have heartburn a lot.
I was diagnosed two years ago with Barrett's Esophagus. I followed the recommendations in THE ACID WATCHER DIET by Dr. Jonathan Aviv, many of which are suggested above. The following year, I had another endoscopy which showed no sign of Barrett's. The diet, plus the elevated mattress, can work wonders if you strictly adhere to it.
About 12 years ago, after receiving no real help from my PCP or my gastroenterologist, I spent two months eating only plain rice and plain potatoes. Then I started adding foods one at a time. To make a long and painful story short, the most important thing I found was that fat in beef and chicken bothered me terribly. I then started looking at the nutrition labels of everything I ate. I was shocked at how many foods had a ton of fat in them.
For a few years I could eat lean beef and chicken, and then couldn't eat the beef any more. I could eat lean chicken, but after a couple years, that had to go too.
I never ate fried foods. My mother didn't make them when I was growing up, and I just never liked them. So if you've eliminated citrus and tomato, etc, and still having problems, try checking the nutrition label of your beef and chicken, get the lowest fat content you can find, and just roast it. If you put it on a rack or crumpled up aluminum foil, any fat it does have will run off.
You can't escape all the fat. After a few years, I had to eliminate beef, then a couple more years and the chicken had to go. I ate fish, but now certain fish bothers me, and that had to go.
Try going without beef for a couple weeks, and just have plain roasted chicken tenderloins with low, low fat, and see if that helps.
Best wishes to all.
Cookie
Me too. So tired of stomach pain. I have lost 28 pounds. Waiting months to get an appt at Mayo Clinic in Phoenix. Don’t understand why it is taking so long just to get an appointment????!!!
@lgumerman - Have you heard anything back from Mayo in Phoenix since you applied? If not, contact them again to check on the progress. It appears that GI appointments are in short supply.
I feel for you. I’ve been on every PPI. Nothing. Been hospitalized 3 times this year from internal bleeding. 5 transfusions all together. Every local test they have, has been performed. Nothing.
Prilosec was working in combination with my latest PPI before my recent hospitalization. They took me off it and the Protonix and now back on Omeprazole.
Have they checked your gastrin levels to rule out Zollinger Ellison?
You are correct. Florida has the better options. I’m waiting to hear back from my case review. Crossing fingers 🤞🤞that I get in.