← Return to Pachymeningitis: Anyone else?
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Brain & Nervous System | Last Active: Apr 20 8:50pm | Replies (115)
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Replies to "Hi @tracyb and @megmor and cc to @cgrammie2. I was diagnosed November 2016 after a mini..."
Hi @jrt26 Reallt hoping we can get in touch - your story is very similar to my family members, down to meningioma in cavernous sinus, then radiation, then Pachymeningitis. Things are not going too great and hoping we could discuss what has worked for you and what specialists you see. Scary times and looking for any connections or people in similar shoes. Thank you