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← Return to Pachymeningitis: Anyone else?
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Brain & Nervous System | Last Active: Jul 23 5:43pm | Replies (110)
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Hello - I have just been diagnosed with pachymeningitis after craniotomy 3 weeks ago. Currently taking prednisone, but as soon as the dose was reduced, I had a return of symptoms. Does anyone have any updates on other treatments that may have worked. I know it is early days for me, but I am not feeling good about prednisone. Looking for any advice and experience dealing with this disease
Replies to "Hello - I have just been diagnosed with pachymeningitis after craniotomy 3 weeks ago. Currently taking..."
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Hi @ginmac,
Welcome to this group. I had 2 Infusions of Rituximab in February 14 and 28, 2017. It didn't work immediately, however, I have been improving at almost 4 months post Infusion. The drug is very expensive and the doctor has to write what other treatments were given and your reaction to the prednisone was. Good luck and ask me any other questions you may have.