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cgrammie2 (@cgrammie2)

pachymeningitis

Brain & Nervous System | Last Active: Oct 6, 2021 | Replies (82)

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@jrt26

Hello, I’m new to this group. I was diagnosed with Pachymeningitis in November 2016 via a mini craniotomy to biopsy dural inflammation first thought to be meningioma in the cavernous sinus area. It was treated with gamma knife twice in 5 years. After the second gamma knife my symptoms of headaches/migraines, dizziness, shooting pain in my eyes, ears and face became worse. 2 years later the MRI showed inflammation of the dura (right and left). I was placed on prednisone taper down starting at 60mg daily. Symptoms got a little better but came right back after I finished the prednisone. So now I just did my first rituximab Infusion and another one in 14 days while on 10mg prednisone. Would like to know everyone else’s experience and treatment. Thank you

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Replies to "Hello, I'm new to this group. I was diagnosed with Pachymeningitis in November 2016 via a..."

Hi @jrt26,
My apologies for the delayed welcome. I’m glad that you found this group. Please meet @cgrammie2 and @shosey. Grammie and Shosey what treatments have you had?

JRT, we look forward to getting to know more about and learning about the rituximab infusion treatment.

Thank you very much @colleenyoung! So far the headaches and shooting pains are not very intense. I do still feel the numbness on the right side of my face/head, concentrated more around my eyes now. My right side eyesight is a little worse than a year ago, however, if I rest my eyes and get enough sleep my vision is still good. I will keep everyone posted after the second infusion on 2/28/17. Thank you again for the nice welcome!

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