← Return to pachymeningitis

cgrammie2 (@cgrammie2)


Brain & Nervous System | Last Active: Jan 11 4:07pm | Replies (103)

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Hello @cgrammie2. Good to see you back on Connect. You’ll notice a few changes on the site since you last visited.
Please note that I removed your personal phone number from your messages. Connect is a public site and we don’t want you to get unwanted phone calls. For your privacy and security, it is better to send a member a private message to exchange contact information.
Here’s how to send private message.
1. Click the member’s @username.
2. Click the envelope icon in their profile.
3. Write a subject and your message.
4. Click Send Message.

Having said that, by sharing on Connect, you not only help the members with whom you exchange information but also those who read the forums but may not have the courage to post.

CGrammie2, How is your husband managing these days with his diagnosis of pachymeningitis? How are you?

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Replies to "Hello @cgrammie2. Good to see you back on Connect. You'll notice a few changes on the..."

My daughter was diagnosed with Pachymeningitis at the age of 12 she is the youngest case in North America she is now 25 and is having serious complications. I'm looking for a Specialist who specializes in this rare disease. Please help.
Scared mom