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Center of Excellence for MAC and Bronchiectasis

MAC & Bronchiectasis | Last Active: Nov 17, 2022 | Replies (18)

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@busybeans

I, unfortunately, have had the same experience of late. I've been going to NJH twice a year since 2011. After my last visit in June 2022 I had several questions about the suggested surgery for my periodic hemoptysis (due to bronchiectasis/NTM/atelectasis). I sent my doctor a message through my patient portal and have yet to receive a response. It was intercepted by someone who said he/she/they would pass the message to him. I am very disappointed and feeling somewhat abandoned. This is not the kind of treatment I've come to expect from this #1 respiratory hospital.

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Replies to "I, unfortunately, have had the same experience of late. I've been going to NJH twice a..."

Same here. I have been going to NJH since 2009. I used to get email response with in 2-5 days and occasionally doctor gave me a call but not the case lately. This have made anxiety worse on top of dealing this devastating disease.