1. < Neuropathy

Increasingly Difficult to Accept Peripheral Neuropathy

Posted by fisbo @fisbo, Oct 10, 2022

I am finding it increasingly difficult to accept peripheral neuropathy it's all very well people coming up with suggestions but carrying them out is quite another. I am no longer who I was and think I am boring and miserable because I am now. Pain takes over and I have become fearful nervous prone to panic attacks which are awful because I start to shake with worrying about the future. I have other worries anyway but if this damned PN would go away it would help.

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Colleencuknfunt | @donrealtesting | Nov 4, 2022
In reply to @kristin8 "I too suffered with depression, anxiety, panic attacks because I lost my job due to the..." + (show)
@kristin8

I too suffered with depression, anxiety, panic attacks because I lost my job due to the Peripheral Neuropathy in my feet but back then I didn’t know, that’s what it was. I managed to dig myself out of that dark hole and kept fighting to get back out in the real world. I am happy to report that I have a full time job and just bought a house last year and am engaged to an amazing man but…my PN has gotten so much worse. I’ve actually had to take yesterday and today off work because I can’t walk. I am on Lyrica, Gabapentin, T1s and vitamins. I do my stretching, wear my custom orthotics and compression socks. I don’t know what else I can do. I’m scared of losing my job because of my PN, I don’t want to end up back in that dark hole again. Any help/suggestions would be appreciated.
Just know you are not alone. Take Care,
Kristin

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Swim. Pool, pond, lake, ocean. Water takes off the weight like being in space. It also has resistance while moving any part of your body. I bike and swim. I love walking but that has become more difficult with my chronic injury. Our pool is not heated, right now in Florida its still warm. In a while it may get colder. I use a wet suit zipper top then, and can stay in for much longer without punky skin or getting cold when you get out. Also massage, and hydro therapy like water tables that massage are awesome. Take it slow and drink water with exercise, rest next day if needed.

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julkun | @julkun | Nov 5, 2022
In reply to @pamelaz "My neuropathy is so bad my legs and feet burn all day. Gabapentin has started giving..." + (show)
@pamelaz

My neuropathy is so bad my legs and feet burn all day. Gabapentin has started giving me tremors and didn’t help. Cymbalta is not helping and neither did Lyrica. It is painful to even live a normal life. Anyone else with this problem?

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I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes, it is impossible to live an normal life. Other pains are magnified. Otherwise I am healthy. I feel like I am being cheated of my later years. Family don't really understand. Did you hear anything about Quatenza (spelling) where they burn the nerve ends in your feet? I am so desperate I might try it. Be well, Jules

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3 replies
johnmacc | @johnmacc | Nov 5, 2022
In reply to @julkun "I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes,..." + (show)
@julkun

I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes, it is impossible to live an normal life. Other pains are magnified. Otherwise I am healthy. I feel like I am being cheated of my later years. Family don't really understand. Did you hear anything about Quatenza (spelling) where they burn the nerve ends in your feet? I am so desperate I might try it. Be well, Jules

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Jules, have you tried boosting your gabapentin to 3600 mg over 4 times slots per day. That amount helps me quite a bit. Johnmacc

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danpinc2022 | @danpinc2022 | Nov 5, 2022
In reply to @julkun "I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes,..." + (show)
@julkun

I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes, it is impossible to live an normal life. Other pains are magnified. Otherwise I am healthy. I feel like I am being cheated of my later years. Family don't really understand. Did you hear anything about Quatenza (spelling) where they burn the nerve ends in your feet? I am so desperate I might try it. Be well, Jules

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I have been in wheel chair for over a year, cant stand at all. I have pt inpatient, outpatient and home health. I gain a little then it gets worse. starting home health again next week. anyone ever heard of a product called Neuropure ?

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1 reply
madgemgunia | @madgemgunia | Nov 5, 2022
In reply to @pamelaz "My neuropathy is so bad my legs and feet burn all day. Gabapentin has started giving..." + (show)
@pamelaz

My neuropathy is so bad my legs and feet burn all day. Gabapentin has started giving me tremors and didn’t help. Cymbalta is not helping and neither did Lyrica. It is painful to even live a normal life. Anyone else with this problem?

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Hi, I know what you mean about trying to seem normal while you are standing in the middle of the campfire.!!!!! I am desperately looking for some resolve. Madge

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Mentor
John, Volunteer Mentor | @johnbishop | Nov 5, 2022
In reply to @danpinc2022 "I have been in wheel chair for over a year, cant stand at all. I have..." + (show)
@danpinc2022

I have been in wheel chair for over a year, cant stand at all. I have pt inpatient, outpatient and home health. I gain a little then it gets worse. starting home health again next week. anyone ever heard of a product called Neuropure ?

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@danpinc2022, I know it's a struggle trying to find something to provide relief when there is no cure. Just reading Neuropure's disclaimer is enough for me to say no help here - https://getneuropure.com/disclaimer-np-1.

Have you seen or tried some of the treatments listed on the Foundation for Peripheral Neuropathy's website? - https://www.foundationforpn.org/treatments/

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1 reply
johnmacc | @johnmacc | Nov 6, 2022
In reply to @julkun "I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes,..." + (show)
@julkun

I am with you Pam, feet burn all day, Gabapentin (2700) doesn't do anything really, Yes, it is impossible to live an normal life. Other pains are magnified. Otherwise I am healthy. I feel like I am being cheated of my later years. Family don't really understand. Did you hear anything about Quatenza (spelling) where they burn the nerve ends in your feet? I am so desperate I might try it. Be well, Jules

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Pam, try 3600 mg gabba. 2700 didn't help me much but 3600 ( max dose) cuts about about half my bad pain in my feet. Also, avoid burning your feet, it can be irreversible. Rather read up on various electo situation therapies.

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2 replies
johnmacc | @johnmacc | Nov 6, 2022
In reply to @pamelaz "My neuropathy is so bad my legs and feet burn all day. Gabapentin has started giving..." + (show)
@pamelaz

My neuropathy is so bad my legs and feet burn all day. Gabapentin has started giving me tremors and didn’t help. Cymbalta is not helping and neither did Lyrica. It is painful to even live a normal life. Anyone else with this problem?

Jump to this post

Pam, have you tried any of the electo stimulating therapies?

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1 reply
danpinc2022 | @danpinc2022 | Nov 7, 2022
In reply to @johnbishop "@danpinc2022, I know it's a struggle trying to find something to provide relief when there is..." + (show)
@johnbishop

@danpinc2022, I know it's a struggle trying to find something to provide relief when there is no cure. Just reading Neuropure's disclaimer is enough for me to say no help here - https://getneuropure.com/disclaimer-np-1.

Have you seen or tried some of the treatments listed on the Foundation for Peripheral Neuropathy's website? - https://www.foundationforpn.org/treatments/

Jump to this post

no,but I will. thanks

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