1. < Gynecologic Cancers

Diagnosed with Uterine Cancer (Leiomyosarcoma)

Posted by cjacobs99 @cjacobs99, Mar 4, 2022

I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.

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cjacobs99 | @cjacobs99 | Nov 4, 2022

I’m hanging in there. I’ve connected with a support group on FB and learned so much about this rare disease. It’s nice to hear other survivor stories, learn from their experiences so I can fight this battle and feel prepared. I’m still fighting LMS and learning to live life with it. I’m going to have a good life and not let this rob me from doing so.

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cjacobs99 | @cjacobs99 | Nov 4, 2022
In reply to @rdm62 "I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove..." + (show)
@rdm62

I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove fibroids. Turns out the fibroids were suspicious for cancer at that time, but my doctor didn't catch it. Then 3 years later, symptoms returned and fibroids returned. After a biopsy, I was at Stage 2A. My only treatment was surgery. I had a complete hysterectomy. It was determined that radiation or chemo wouldn't be helpful. So far, it has been 11 years and the cancer has not returned. There is hope out there. Leiomyosarcomas can be aggressive and can be fed by estrogen or progesterone. I have had both Covid vaccines and every booster available, but since I have no ovaries, I'm not producing hormones, so it's not a factor for me. Just remember, synthetic mRNA has been around since 1984. Researchers took what they learned from those early vaccine studies using mRNA to develop the Covid-19 vaccine, so it's not like this was a completely new thing. However, acute stress from having Covid can cause the adrenal glands to produce more hormones which can change your menstrual flow. And as you know, there are so many other factors that affect our hormones. Hard to narrow it down to one thing. Try not to focus on that element, and instead focus on staying positive.

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I am so glad you have not had a reoccurrence. This cancer is a real beast. Unfortunately my was not caught in the early stages but I’m learning there are options. My tumor tested positive for hormones , so I’ve been taking a hormone blocker because your body naturally produces hormones (even without a uterus and ovaries). It has helped so far along with six rounds of chemo , 5 radiation sessions and tons of crying and prayer. I’m in a much better place.

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cjacobs99 | @cjacobs99 | Nov 4, 2022
In reply to @val64 "The problem with hypothesizing about connections between Covid/vaccine and cancer is that most of the people..." + (show)
@val64

The problem with hypothesizing about connections between Covid/vaccine and cancer is that most of the people who would have gotten cancer in the past year anyway, even if there had been no Covid pandemic or vaccine, have had the vaccine and/or Covid in the recently. So all these people can say "hey, I just got that vaccine, maybe that's why I got cancer." But that doesn't mean anything unless overall rates of cancer have gone up since Covid or since the vaccine. I tried to look this up, but the American Cancer Society's "2021" Cancer report seems to be based on data from 2017. I'm not sure where to find more recent data.

I did have two doses of the vaccine about a year before I was diagnosed with endometrial cancer and a booster about 6 months before. I also had Covid after I was diagnosed. Personally, I don't think there's any connection.

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I agree it will be interesting to see if an increase in cancer patients occurred during the “Covid period”. Unfortunately it may take years to gather that data, but I do hope it will shed some light to the unknown.

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designer22 | @designer22 | Nov 18, 2022
In reply to @marys1956 "My gyn couldn’t feel my football-size tumor even after I was Dx’d. I was pissed that..." + (show)
@marys1956

My gyn couldn’t feel my football-size tumor even after I was Dx’d. I was pissed that it wasn’t found earlier as I had gone to see her and other drs the past year for my symptoms. Oh well. Surgery removed most of the leiomyosarcoma from my pelvic area. It was a massive intense surgery. I had my first chemo session a day ago. Fingers crossed the cancer can be controlled.

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Hi, I had a similar situation with a very large mass & difficult surgery. I start chemo on Monday. Can I ask about your stage & treatment? Mine is 2B and I will have 6 rounds of gemcitabine & docetaxel.

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1 reply
Wrightsville Beach | @wrightvillebeach | Nov 20, 2022

My vaginal bleeding ( 17 years post menopausal) appeared days before my 2nd covid shot. Referred to gynaecologist. Negative biopsy. Pressured to get first and 2nd. Opted out of booster and no one has suggested I get it. Uterine Biopsy a year later was positive for adenocarinoma.
Second Biopsy was sent to Boston. Oncologist does not know why it was sent. Perhaps I am now part of a study.

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2 replies
sm22 | @sm22 | Nov 20, 2022
In reply to @wrightvillebeach "My vaginal bleeding ( 17 years post menopausal) appeared days before my 2nd covid shot. Referred..." + (show)
@wrightvillebeach

My vaginal bleeding ( 17 years post menopausal) appeared days before my 2nd covid shot. Referred to gynaecologist. Negative biopsy. Pressured to get first and 2nd. Opted out of booster and no one has suggested I get it. Uterine Biopsy a year later was positive for adenocarinoma.
Second Biopsy was sent to Boston. Oncologist does not know why it was sent. Perhaps I am now part of a study.

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Yes, my vaginal bleeding was 6 years post menopausal. No one has suggested I get the booster and I have no intention of getting another COVID related shot again. Huge regret that I did in the first place. I wouldn’t be surprised if they enrolled you in a study but they should get your permission first correct? I reported my adverse event to Pfizer and they keep emailing me back saying they need more information after I have already spoken to them twice on the phone. The then send me a password to a questionnaire that doesn’t work. Typical Big Pharma operation. All the best to you.

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marys1956 | @marys1956 | Nov 20, 2022
In reply to @designer22 "Hi, I had a similar situation with a very large mass & difficult surgery. I start..." + (show)
@designer22

Hi, I had a similar situation with a very large mass & difficult surgery. I start chemo on Monday. Can I ask about your stage & treatment? Mine is 2B and I will have 6 rounds of gemcitabine & docetaxel.

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I have stage 4 Leiomyosarcoma and am starting Round 2 this week.

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terradean | @terradean | Nov 20, 2022
In reply to @wrightvillebeach "My vaginal bleeding ( 17 years post menopausal) appeared days before my 2nd covid shot. Referred..." + (show)
@wrightvillebeach

My vaginal bleeding ( 17 years post menopausal) appeared days before my 2nd covid shot. Referred to gynaecologist. Negative biopsy. Pressured to get first and 2nd. Opted out of booster and no one has suggested I get it. Uterine Biopsy a year later was positive for adenocarinoma.
Second Biopsy was sent to Boston. Oncologist does not know why it was sent. Perhaps I am now part of a study.

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That is very interesting, I even had last covid booster and flu shot after hysterectomy, and I have adenocarinoma also, makes you wonder.

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cas1400 | @cas1400 | Dec 25, 2022

Thank you for making this post. My cousin has this type of uterine cancer and she got it right after having the vaccine (I believe 2 months afterwards). She is only 39 and never had any complications before… I always felt like it had something to do with the vaccine. Watching her go through this has been absolutely heartbreaking and I am so sorry that you are experiencing it as well.

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sm22 | @sm22 | Jan 3, 2023

Something similar happened to me and I totally believe that there is a connection between the COVID vaccine and uterine cancer.

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