Hi John -- thanks for the welcome and I'll concede the title of medicalese to you with that list of yours. All I know about mine is that its one of the rarest and there's no research on it (for lack of subjects, not adjectives). I'll spare you the highlight reel of how-I-went-from-happy-n-sassy to aw-man-this-rots, but bottom line is I was getting up from a nice night's sleep on April 22, 2020, and promptly fell the floor with rubber legs. Literally all downhill from there.

The low point was a year later at a rehab facility (broken hip in a fall) where I was actually totally helpless. I'm a very active gardener (native plants, ecology, all that) and I got it into my head that I was not going to quit, period. So the docs were loading me up on mostly the usual gabapentin, cymbalta, later a flirtation with prednisone and, of course, good old IVIG (I personally think the lemon-lime flavor is best). I'm thinking now that I hit something of a remission early last summer (while in cardiac rehab for bypass stuff), but since then, not much progress.

Still, I'm trying to work as normal as I can, going for little accomplishments, figuring out adaptation, forcing stuff like walking without hobble, etc. Giving up driving a car was tough. Reading the literature on all things neuropathy was a challenge and shirt cuffs are a pain!

All in all, not terribly exciting -- so thanks for reading and have a great day! Now I get to go shred two acres of leaves.