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NPH (normal pressure hydrocephalus): Let's connect and share

Brain & Nervous System | Last Active: Sep 2, 2022 | Replies (40)
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@Erinmfs

Hi, @joanmahon I'm here! I can describe my situation if you find it helpful 🙂

The NIH told me I had acqueduct stenosis and prominent ventricles at a research study. NIH told me I had a significant amount of water on my brain. Recommended that I consult with a brain surgeon. From there, I went to Mayo Rochester. The brain surgeon wrote 'clinically insignificant hydrocephalus' in my EHR. Neurology said that they found the acqueduct stenosis, but that it was considered 'normal'.

Rochester Neurology also said I wouldn't qualify for a shunt until I failed the Mini Mental Status exam (diagnosed with dementia) and/or I was shuffling my feet (impacted gait).

Good luck to you! Wishing you health and wellness

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joanmahon | @joanmahon | Aug 6, 2019

Hi Erin, apologies took me so long to see your kind message. Yes, your message is helpful. Seems to me that sometimes there are conflicting diagnoses (NIH and Mayo), which produces even more worry. I do know that tests have to be conducted to see if one is a candidate for a shunt, and from all my readings, a shunt may also cause a number of complications once inserted....so nothing is a perfect solution to NPH, seems to me. My own complication is that I also have Adhesive Arachnoiditis finally diagnosed in 2010, and current symptoms of NPH can also be signs of progression of AA. I am so looking forward to my first evaluation appointment next week at Mayo. And efforts to tease out both neurological conditions. NPH has treatment, AA does not. Thanks for writing, Erin. I learn so much from everyone.

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