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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hello... I'm Geoff and the medical people have decided I managed to inexplicably become tangled up into an astonishing collection of adjectives: inflammatory idiopathic autoimmune axonal sensorimotor neuropathy with autonomic neuropathy. Whew! I have to carry that around on a little card because I can never remember it. Three years in and I'm beginning to think they're throwing spaghetti at the wall hoping something will stick. But I do have to admit every day is a surprise! Nice to find you!
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Welcome Geoff @gmehl, That is certainly a mouthful to remember. I only having to remember idiopathic small fiber peripheral neuropathy but I do get to add to that 🙃-- polymyalgia rheumatica, primary aldosteronism, lymphedema and a few others that come with old age. It does help to keep a smile on your face. We are definitely glad you found Connect!
There are a lot of different discussions on Connect in the Neuropathy group that you might find interesting if not helpful. You can also search for topics in the group search box. Here's a list of the discussions in the group.
-- https://connect.mayoclinic.org/group/neuropathy/
How long have you been on your neuropathy journey? Found anything that helps some?