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Almost dead from Long COVID! HELP!!!!!
Post-COVID Recovery & COVID-19 | Last Active: Apr 13, 2023 | Replies (61)Comment receiving replies
To clarify, UNC recommended the exercise and nap? I’ll try it.
How did you come to realize you had EBV? Did you have it before?
Do you think you have long Covid and EBV? Or just EBV? I’m going for an EBV test to see if it’s a factor in my symptoms.
Replies to "To clarify, UNC recommended the exercise and nap? I’ll try it. How did you come to..."
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Hi,
Yes UNC long Covid clinic and chronic fatigue specialist at Nova southeastern U, both recommended naps and tapering exercise, pace yourself. And all my other recommendations.
Friends were asking if I was tested for EBV. At first I didn’t even know what that was. I looked it up. Then realized Since I had Mono in college, which is caused by EBV!! I probably had it. EBV has been latent in my body for 34 years! Crazy. Until Covid reactivated it. Dec 2020.
Then asked for test, finally chronic fatigue specialist agreed to do them. EBV tests were positive!
They put me on Valacyclovir 500 mg twice a day.
Covid reactivated my EBV( I got from mono 34 years ago! ) And that is why I think I got Long Covid.
I have long Covid because I still have my my Covid symptoms for 23 months, fatigue, migraines, tinnitus, head congestion.
I have EBV antibodies which shows I had it. ( mono 34 yrs ago) . Right now I test negative for EBV virus but Covid symptoms are not going away. I think valacyclovir is helping VERY slowly, I went a year and half with no suggestions from Dr. Or explanation as to why I had long Covid, so if anything it brings me hope.
You have to be your own advocate I have learned.
Best wishes.