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Almost dead from Long COVID! HELP!!!!!
Post-COVID Recovery & COVID-19 | Last Active: Apr 13, 2023 | Replies (61)Comment receiving replies
I have had long Covid for almost 2 years too. I feel your pain. It has been a journey. I agree with Tomtom75. I have done the same. It is so important to get into a routine, start with 10 mins a day of exercise for 3 weeks, then increase time. I was told by UNC Covid clinic. (Start with walking to mailbox or around your place) Eat well, nap daily once late morning and again mid afternoon, 30mins-1 hour. Listen to your body, some days you can’t do much, others follow a schedule. Pace yourself. Very slowly you will feel better. I needed a mental health therapist too. Take B12 supplements, multi vitamins.
My case, Epstein Barr virus was reactivated, so I am taking Valtrex, twice a day 500mg. And K Pax immune vitamins also. I think it is helping. Hang in there. Find one thing a day that makes you feel happy and write it down and put in a jar. Read them when you feel like shit. Anything, like it makes me happy when I see a beautiful flower 🌺 I appreciate the little things now. Try to socialize a little too, Good luck.
Replies to "I have had long Covid for almost 2 years too. I feel your pain. It has..."
Thank you very helpful I can’t seem to get into a routine. My chronic fatigue syndrome is overpowering me and I’m doing my best but I still can’t get into a routine no exercise, barely any sunlight.
I'm in the same boat as you with the EBV being reactivated. I was 45 when I caught Covid and I'm now a 47 yr old Long Hauler. I just hit my two year mark a couple days ago and it hit me hard. As soon as I caught Covid I stopped getting a period and haven't had one since. It's nice, but wtf is this disease doing to my body?! I gained a lot of weight because I have hypothyroidism and Covid essentially started eating my thyroid. It nearly killed me. I spent March through July sick in bed with a 100-102 degree fever and flu-like symptoms unable to do anything. It's just been me and my disabled kitty the whole time. My family and friends have disowned me. I haven't hugged someone in over a year.
I have nobody to talk to. I'm stuck in my studio apartment in Boston alone and watch the world go on outside my window and wish so badly that I had my old life back so I can be like those lucky people. I have an appt with my pcp tomorrow and I'm going to have him prescribe Metformin. My glucose levels are elevated as well and I've read on other forums that people have had good luck with that. When I first had EBV I remember taking Valtrex. Is it helping your symptoms now? I'm wondering if I should ask my doctor to prescribe that as well. I was looking into an inhaler called Trelegy also, but read the side effects and they scared the shit out of me. Have you heard of NAC? I take that with glutathione. Look it up and check out the benefits. I also take Elderberry with Zinc and Vitamin C, Ashwaghanda root with turmeric, ginger, apple cider vinegar, 10,000IU of D3 and a pre-natal multi vitamin.
I've been fighting with SSDI for a year and a half and have barely any income which doesn't help the stress levels. Sorry for the long message, but I wanted to reach out to find out if the Valtrex is helping?
Cheers,
Melissa
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To clarify, UNC recommended the exercise and nap? I’ll try it.
How did you come to realize you had EBV? Did you have it before?
Do you think you have long Covid and EBV? Or just EBV? I’m going for an EBV test to see if it’s a factor in my symptoms.