My husband has the same issue, it started when he fell 15 feet six years ago. Now his shunt is open all the way and I'm very concerned about all this. What happens now when the shunt stops working would he go through a different surgery or is there more that can be done.
The doctors will not talk to me because I exploded on them.
(My story)
My husband was fine when I married him. He would get nose bleeds when the season changes, in 2005 or 6, he got his nose operated on and stopped his nose bleeds, this outcome caused very bad migraines and he started to pass out. The doctors gave him migraine shots which seemed to help at times. In 2013 he went to work, he told me that he was feeling good and that his migraine was making it hard for him to concentrate, I told him to leave early and contact his doctor. He said no that he would be fine.
20 minutes later I get a call stating that he fell 15ft and that the only thing that was wrong with him was a cut on his right side of his head.
Between 2015 to now (can't remember the dates sorry) he went through brain surgeries.
The first surgery was on his neck, where the doctor told us was scar tissue, and they had to remove this for the swollen cerebellum to have room, the tonsils were also coming down to inter his spin to stop the fluid to flow. I told the doctor that he shouldn't have moved the full scar tissue cause now they opened the dam and the fluid is rushing through with nowhere to go but to flood the brain.
When they placed the 1st shunt everything was working fine until he started to change about what he felt about himself and didn't want to do anything but complain. (6 months) They replaced it with a new one. The 2nd shunt became infected and they wanted to put a new one in while the infection was still there, and I said no that he can have the new shunt when the infection was gone.
(This is where I'm against the whole shunt thing) Before they took the infected shunt out, my husbands whole attitude about me as his wife had changed. He didn't want me anywhere near him, he told me that I was trying to kill him. I ignored him and when the infection cleared and they put a new one in, his attitude towards me has gotten worse. I couldn't pick on him or even go places with him without him exploding on me. (This shunt decided to stop working)
Now, this is the last programmable shunt, he can only go through MRI's in Pittsburgh because no other hospital has the machine to reprogram the shunt.
I can't joke, share my problems or concerns with him. When my daughter (his step-daughter) got pregnant he did everything for her. In my mind, he was acting as her husband/boyfriend and when I tried talking to him about it he said that he was being nice and he wasn't doing anything wrong, months went by his attitude got worse. We went to the doctor who put in the shunt and found out that the hose that ran behind his ear was closed off so he had to go through surgery to replace it. I told the doctor about his attitude and if they could place the shunt into a different area because I couldn't handle his mood swings. The doctor laughed and told me that I should leave my husband alone and not talk to him.
Now, he had to have the shunt open wider, he's repeating himself, he has no common sense now, and my feelings as a wife doesn't matter and the doctors will not listen to me at all.

If things don't change, the next step for me would be a divorce. I love my husband I truly do, but I can't handle the attitude from him, and the doctors won't listen, they call me the whining female.
Is there anyone else going through these issues of the shunt or is it truly me?