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Metastatic breast cancer: Anyone else?

Breast Cancer | Last Active: Mar 12 3:44pm | Replies (213)

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@leeann66

Hi everyone, I have posted a few things here before and thought I’d share my updates that may offer ideas for the rest of you. Quick recap, diagnosed June 2020 metastatic Breast Cancer with mets in lymph nodes under arm and bones in many places. HR +\ HER2 negative but borderline with a FISH score of 2+. 19 months on Kisqali and Anastrozole (was Ned for about 16 months) then Mets started to grow. Went on Afinitor and Exemastane but reacted badly, switched to Xeloda, after 6 months scan showed it wasn’t working and cancer has progressed. This week started in a trial for a new soon to be on the market combo drug Dato-Dxd that in the first two phases of trials got great results. So far just had one treatment Tuesday but will post updates down the road. My message to all of you is we will Always be on treatment, will be NED for aWhile then that will change and we’ll go into something else. Good news is there are several options - lots of tools in the tool box - and like this trial I am on, they will continue to develop new, better treatments for us that one day might even lead to a cure! Stay informed, ask your doctor about programs and trials available, stay active and focused and let’s all live our best lives in the battle together!

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Replies to "Hi everyone, I have posted a few things here before and thought I’d share my updates..."

I, too, have metastatic breast cancer now in my liver. Chemo was suspended because of high liver enzymes; now am on Keytruda, a drip every 21 days. Had a PET Scan this past Wed. My thoughts are with you, I would like to stay in touch with you.