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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 1 day ago | Replies (169)
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@becsbuddy

@dustymi11er Here are some good articles to read. Most of the info is over my head, but . . . .
https://nn.neurology.org/content/5/3/e448
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6410928/

I met with my neurologist’s assistant today and she agreed that some people can taper steroids quickly, but for others, like me, slow is the way to go. Just speak up with your consultant and the taper is too fast.
Try it!
I responded to you on the Fb group today, Graeme!

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dustymi11er | @dustymi11er | Nov 4, 2022

Hi all. That’s me back home. I got my mri results and they showed a massive improvement. Still a way to go but shows the meds are working. I’ve upped my myfenex to 1000mg day and night and we’re going for 30mg pred cut down 10 mg a month until at 10mg then see where we go from there. Hit the specialist with a number of alternatives which he is going to have a look into especially the cytoxan and immuran as well as the . Will see how I get on with the myfenax over the next few months. Thanks again for all the help and support on here. You’re all been great 👍

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