← Return to Aromatase Inhibitors: Did you decide to go on them or not?

Discussion

Aromatase Inhibitors: Did you decide to go on them or not?

Breast Cancer | Last Active: May 12, 2023 | Replies (1190)
Comment receiving replies
@windyshores

I had Oncotype of 8 with risk of recurrence at 6% with meds.

I hope some of you will at least try an AI. For many of us, the side effects are minimal and addressed with exercise. Granted, some have problems on these meds. I honestly think that forums are a bit skewed by negative posts exceeding positive ones.

I already had pretty severe osteoporosis when I went on letrozole. My bone doc did not want me on Reclast or Prolia (long story, due to other health issue). The drop in bone density the first year was similar to the abrupt loss after menopause, and then eased up. I am on Tymlos now to rebuild.

I did letrozole for 5 years and felt safer on it. I did a Breast Cancer Index test at year 5 on meds, to see if there was benefit to extended treatment and the answer was no (but high risk of recurrence at 5.7% with a cut off in the 4's.). I am 8 years out.

Jump to this post

Replies to "I had Oncotype of 8 with risk of recurrence at 6% with meds. I hope some..."
anjalima | @anjalima | Nov 4, 2022

I am in month 7 of Anastrozole and tolerating it well. Intermittent joint soreness mitigated by warm baths and showers, yoga postures and walking… now onto knitting as weather cools. Also, at 72 I cannot rule out age associated soreness; not like it was never there before.

I avoided chemo with a beneficial ONCOTYPE and opted out of radiation as I had a unilateral mastectomy. With 98% ER+ I feel safer with Anastrozole. I worry about bone density so I’m mitigating with weight bearing exercise and extra food calcium and D3 and K2.

If your doctor recommends AI it may be worth a try; not everyone has intolerance or difficulty on this treatment. 🌸

VIEW AND REPLY