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Chemo not working. What to do next??? Please help!!!
Pancreatic Cancer | Last Active: Dec 7, 2022 | Replies (30)Comment receiving replies
Thank you so much for your post.
I am heartbroken and just found out my brother who has pancreatic cancer, was told it has spread to his liver and has two small dots on his liver that are each 1 cm. They are unable to operate on him due to the tumor wrapping itself around his organs. The treatment so far has been Chemo, and radiation.
He currently is being seen by Dr. Truty Mayo/MN and the Doctors who are treating him in Ohio told him this news today and that he has 6 months to live.
I am asking my brother to wait to talk to Dr. Truty and this other Doctor told him a year ago he had 6 months to live and to please wait to hear from Mayo MN.
They do not have the reports back to tell him if the tumor is dead or not and he does not have the results of the CA-19-9 bloodwork.
I do not know how to feel and I do not understand why the Doctors in Ohio would tell him this when there is still hope.
I guess, I am asking if I am delusional?
Replies to "Thank you so much for your post. I am heartbroken and just found out my brother..."
There is a new treatment out by rain rharma.called Milademetan.It has been used on all kinds of cancers and is showing a 30% reduction of tumors.See if he can get it.
You are not delusional. You have to have hope. I live in Ohio as well and chose the ClevClinc because they are so well known and listed with the PanCan organization. Very negative vibes after my stage IV diagnosis in May. Researched more on my own and there are very few cancer centers specific for the pancreas. CC is not one. I have since been in touch with John hopkins in MD, which is a pancreatic cancer center and even tho I receive chemo locally in my home town, my local oncologist and JH oncologist consult with one another. I will also be contacting Mayo as I have been hearing so much about Dr Truty. MY goal is surgery eventho CC said I am not a candidate. Articles by Dr. Truty describe surgery for cases like mine--I am healthy and have had no symptoms and no health issues leading to this diagnosis. Non smoker, occasional social drink with family (altho not any more since it no longer tastes the same), no history of cancer in my family. And so far folfirinox is working.
If I accepted CC's opinion, I would have given up. Don't accept one opinion--go to specific Pancreatic cancer centers for second opinion. The CA19-9 is a simple test--he should have received results right away and scans every couple of months. Keep advocating for him!
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@dnay6872 this is such tough news to get about your brother. Has he been offered comfort care, often called palliative care? Or hospice?