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Small Fiber Neuropathy discouraged
Neuropathy | Last Active: Apr 13, 2023 | Replies (124)Comment receiving replies
Very often… I tend to think like John on this one. I had “things” before the years I ever had this sudden onset of PN, and I’d get them treated. We all are trying to manage our symptoms regardless of cause, and for me, cure the things that might be able to. But it’s hard, because it is easy for other specialists to take something and say it “COULD” be related to the neuropathy, and therefore decide not to do anything. We have to be proactive if we think it might not be and haven’t heard of many others having the same symptoms. I had a doctor accept a swollen lymph node and want to “watch” it, but I pushed for biopsy and sure enough it was cancer, not PN. And it was curable, not just “treatable “, so I got that cured. Vision problem? Yes, and it was film that developed after cataract surgery, a somewhat normal occurrence, and with a simple laser follow up I can see clearly again! That sounds extreme, but we can’t fear double-checking anything odd if we’re not convinced it can all just be lumped into Neuropathy, especially if there are pieces of our lives that can be made easier on us while we do our best to manage the things that can’t be cured.
Replies to "Very often… I tend to think like John on this one. I had “things” before the..."
Debbie - I've posted before my axonal sensory motor PN and my balance is getting worse about 15% in last 18 months. Your comment about making things easier and do our best to manage things that can't be cured I think is the key and I'm glad you brought it to the surface. I am in PT as of a week or so ago and working on balance therapy. Any improvement on balance can improve self-confidence and for me that is vital. I have fallen a few times and that isn't fun. Fortunately, no harm except for my confidence. I will not give up in trying to improve in areas where I can. I'll be happy to take any small improvement. Ed
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Thanks for your response. I can work with the information I get from this group!! I have had no Doctor that is really interested in my PN. I have tried a few and get a pill or an "arch support", but nothing really helpful in 6 years. I finally asked a very reliable Sports Doctor if she knew of a reliable Neurologist in our area. She said, "Sorry, not near us." So, in my case, I have turned to this group and have gotten very good, caring answers. I cannot drive far, so i appreciate every response I get here! I just mentioned that because most folks say, "work with your Medical Doctor(s). " Thank God for this group!!