It’s never to late you come to the right place , I’m a Neuroendocrine survivor I had surgery to remove a tumor in 2011 from my small intestines and I didn’t know what it was I suffered with stomach pain for years and was misdiagnosed with IBM , fast forward 2022 the tumors spread ,I was told carcinoid cancer is a slow growing cancer by many oncologists and it was from 2011 to 2022 I had no problems , I understand the fear you have. the surgeon that wanted to check the endocrine first , must feel like your case is not life threatening but with the continued growth you have to be proactive and seek second opinion, I pray you get resolution soon