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Aromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
I had an 95% estrogen positive /5% progesterone positive breast cancer. I chose a bilateral mastectomy and had that done 9/13/22. My Oncotype DX score came back at 10. No chemo
Oncologist wanted me to start AI. The Oncotype report stated even on AI there was only a 3% chance of reoccurrence. So I chose not to do AI as I have a 6% chance of reoccurrence.
I will take my chances, exercise, limit alcohol, eat well and avoid the damage AI cause.
Replies to "I had an 95% estrogen positive /5% progesterone positive breast cancer. I chose a bilateral mastectomy..."
Hello,
Like you my Oncotype score is 10, but I don't see on my report where it would be 6% for distant recurrence without AI (only says 3% with AI). I had a local recurrence after 2.5 yrs, did not take AI, but am hoping local and distant are two very different things....I will try AI this time around.
Could you let me know where the 'without AI' percentage is found on the report?
Thanks!
I feel the same way as you. I have been taking AI for 2 months following a lumpectomy at the end of May. I opted not to have radiation. My oncotype was 5. I have been having some worrisome side effects from the Arimidex: my knees hurt worse than before and my dry eyes are also worse. The hot flashes are also annoying. I am very concerned about the long term effects on bone density, cognition and memory loss. I have been quoted the same percentages of recurrence as you have---6% if I don't take the AI, and 3% if I do. I am seeing my oncologist next month and will probably quit the AI.
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Sounds like you are doing well. Did you opt for radiation? Sending a hug! Ellij