Replies to I too have Myotonia Congenita, I was diagnosed at age 26, it manifested with pregnancy, im…

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Neuropathy | Last Active: Nov 8, 2025 | Replies (157)

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@jcatrette

I too have Myotonia Congenita, I was diagnosed at age 26, it manifested with pregnancy, im now 57, I have a Doctor here in Libertyville Illinois that is a specialist of MC but I am the only patient she has ever treated with it.

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Replies to "I too have Myotonia Congenita, I was diagnosed at age 26, it manifested with pregnancy, im..."

John, Volunteer Mentor | @johnbishop | Nov 1, 2022

Welcome @jcatrette, It's good to hear you have a doctor that is a specialist with Myotonia Congenita even if you are the only patient she has treated with the condition. Has your doctor suggested any treatments or lifestyle changes that have helped you manage MC?

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