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Hello @robatk17,
I'd like to welcome you to Connect, and thank you so much for sharing your history, and all the difficulties you've encountered while trying to find some relief! As you will see, there is a whole community here, ready to provide some answers and support.
I'd like to introduce you to one of our Mentors, @kdubois who can give you some valuable insights about her Nissen experience; you may also wish to view this discussion in the Digestive group:
Nissen Fundoplication reversal: http://mayocl.in/2lTNbGo
There you will meet @myskye, @tgirl, @katmandoo, @SherryD, @gregoryd, @carolynlivingjaks, @cowbow1997, @peck1944, and @kozlo52.
Please meet @kariulrich, who has a current discussion on MALS; you can read all the posts here, http://mayocl.in/2lB3exF, and feel free to tag @lisa01, @lmtuska, @jamorris9, @sarah1317 for more information.
@johnbishop, @jimhd, @magg, @medic7054, @rabbit10, @edgar, would you be able to shed some light about methadone, it's presumptive use, and link to idiopathic peripheral neuropathy?
@robatk17, perhaps considering a second opinion may be beneficial for you; how are you coping with the reflux? Have your healthcare providers given you any explanations for the negative feedback?
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Thank you for all of the references. It will take a that while for me to sort through them. If it is the vascular department that you are suggesting a second opinion, I have already done that. It was the first position that wrote a false narrative, and the second one followed suit. Going to a different institution is probably the better solution. For them to say that MALs is not a “legitimate condition” is nothing but hubris. It is fairly obvious that at some point the lack of blood flow will diminish function. So even though the vessels are widely patent, the need for a second source of blood supply would indicate that this is, from an evolutionary point of view, still a very important redundancy. So I wonder at what point do they think that treatment is necessary? I think that they are on the losing end of this argument.