Hi Janice, I'm sorry to hear that you haven't found any help for your pain yet. Did you see the reply to your first post earlier in the discussion by @rwinney? Here is a link to Rachel's reply to you - https://connect.mayoclinic.org/comment/762901/.

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Dear Janice, the difficulty is coming to grips with learning ways to help manage living with chronic pain versus the risk of surgery, like you explain may not guarantee relief. What does your gut tell you to do about surgery? Would it be worthy of consideration for you?

I'm sorry you are in pain and struggling. Do you have companionship, someone to help you through obstacles? Are you able to walk and exercise?

I also have scoliosis in the upper spine neck area, stenosis, and a very rare condition called Syringomyelia which is basically a hole in my spine. Have you tried Tramadol? it's a schedule 4 pain med so it's easier to get a prescription and I read that it's designed to work from pain originating from the spine unlike other pain meds, no other pain med has worked, I've tried morphine and oxycodone which didn't have much of an effect on my pain.

So I understand where you're coming from.

@janicecarter
Janice, I’m so sorry to hear about your constant pain. Pain also saps your energy.
I just heard from a friend in her 70s with lifelong scoliosis. She is having surgery this week. They are going to fuse 13 vertebrae. It was a difficult decision, but she hopes to get a better quality of life.
Kidney stone pain is another bad one- my daughter has dealt with it.
Have you thought about getting another opinion from a place like Mayo Clinic?