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Neuroendocrine Tumors (NETs) | Last Active: 16 hours ago | Replies (411)Comment receiving replies
Replies to "Hello all I was diagnosed diagnose January of this year 2022. I have neroendocrine carsonoma .they..."
Hello @marplute and welcome to Mayo Connect. I am sorry to hear of your NET diagnosis this year. I've had three surgeries for NETs and I understand how surprising this is. My NETs were quite small with no lymph node involvement and no metastasis and yet I had three surgeries in 2003, 2005 and again in 2016. There isn't any way to know when another one might show up. It sounds like you had clear scans after your surgery which was good.
As my NETs were in the upper digestive tract, I have upper endoscopies every other year and blood work yearly. I'm sure your medical team will come up with a follow up schedule for you as well.
You mentioned that you had lower stomach pain for several years. Is that now resolved?