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Polymyalgia Rheumatica (PMR) | Last Active: Feb 1, 2023 | Replies (111)
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The only thing that helped me was prednisone--40mg a day of it (an unusually high dose). I've been on 40mg for 5 months and have been unable to taper at all despite several tries. My dr said I have a particularly severe case of PMR and that it will be a long road and extremely slow taper. Yes, the side effects are terrible, but the pain is worse. All of which is to ask how much prednisone you were prescribed? Some people need more than others. If your rheumatologists are certain it's PMR, have they discussed increasing the dose of prednisone? It might be worth looking into. Good luck.
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Won’t increase dosage of prednisone. It took my normally LOW blood pressure to the sky, and the pressure in my eyes were raised to over 30- warning of glaucoma. I was shaking and could not get a spoon to my mouth. I was jittery, anxious, angry, and exhausted.
My pain was also present. Now I take a prescription anti inflammatory and a Tylenol 8 hr arthritis pain killer. Bad for my liver, but prednisone is poison.