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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 17 hours ago | Replies (845)

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@colleenyoung

Hi Marty, @msannino. Some difficult choices to be made. How did the second opinion go? Did they recommend surgery first?

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Replies to "Hi Marty, @msannino. Some difficult choices to be made. How did the second opinion go? Did..."

Hi thanks for asking. I did get a second opinion at Univ of Penn Medicine two weeks ago. The Penn surgeon’s proposal includes removing the tumor, Splenectomy (spleen), partial nephrectomy (left kidney) and Pancreatectomy Distal (partial spleen). In his opinion he explained that there isn’t enough clinical study evidence that shows a benefit to radiation treatments of liposarcoma in the abdominal area before surgery. Furthermore radiating the tumor can destroy the cells that would tell them more about the type of cancer and likelihood of recurrence. Unlike the first surgeon who planned to remove the full left kidney mainly because of radiation damage, the Penn surgeon wants to spare/preserve the kidney by doing partial removal. which I appreciate. That said, I am going for a third opinion at Johns Hopkins Cancer Center to see if they have a different approach to a situation like mine. Their website talks about radiation treatment direct to the area after tumor is removed while still open in surgery. Not saying I would go that route but JH seems to offer some other treatment protocols. This has been a long slog to get information I can use for an informed decision but I’m not regretting the effort. I already learned so much from getting just two opinions. I’ll post once I make my decision after I get the third opinion from JH Cancer Center hopefully within the next week.