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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 9 hours ago | Replies (1382)Comment receiving replies
Welcome new members!
@mamarina, that sounds like good news that your tumor shrunk enough to make surgery a possibility again. Have you decided to go ahead with surgery?
@johnlair, good for you for persisting when you knew something wasn't right. You've heard the term scanxiety, right? It's a thing to be nervous before your scans. I think even getting them as frequently as quarterly, one never completely relaxes about an upcoming scan. Do you do something kind or enjoyable for yourself after the scan to associate it with something to look forward to?
@stageivsurvivor Thanks for spelling out FDR (First Degree Relative). Like @knolmom and @rexsan20, I was wondering. 🙂
@lanceh, you have had a rocky road. Thank goodness your original surgeon persisted. Hearing you've got stage 3 pancreatic cancer is a gut punch and one can't help but be concerned for the future and family - everything. You have come to the right place to connect with others, survivors like @stageivsurvivor @philv @thebobk @marvinjsturing @nhow234 @aprilg and many more.
@philv, what recommendations has your cancer team offered to help with the weight loss?
Replies to "Welcome new members! @mamarina, that sounds like good news that your tumor shrunk enough to make..."
Philv
On weight loss not much. Ive talked with a few nutritionists but they really werent much help except drink boost and ensure. I have 2 stents billiary and dueodenal so my food intake is somewhat limited
I take enzyme creon , i hired a nutritionist who evaluated my bloodwork and gave me various supplements
I add whey powder, canned coconut milk endures to smoothies. But I can only ingest small amts at a time so I only maybe drink 8 oz , 4 oz at a time. Im struggling to maintain my pitiful weight
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Coleen my surgeon ( miami cancer institute ) was very discouraging actually as to a good out come for me. And said they would do it if I was 100% on board with all that could go wrong and a painful recovery. He wouldnt be able to do it laparoscopically and said realistically it might gain me another year and half.. and id have to have surgery nov 3 before too much scar tissue from rads developed ..
as did the other opinion from johns hopkins ..
who said if I got radiation he wouldnt do surgery
Well I did the proton mri guided radiation the last week of Sept.
thank you all for input