Omg I have a child that was finally diagnosed with syringomyelia ( ballon filled with spinal fluid in the spinal canal) at age 16 and is now 31 just wanted you to know there is an organization in Texas that is great. Not sure if you were aware of it. ASAP.org ( American Syringomyelia and Chiari Organiztion). They have year.y conferences usually held in July in different states. There is money available for some that can’t afford to attend on their own, not sure what the criteria are though. We have been to 3 or 4 over the years and learned so much. It is with that education that I learned that narcotics DO have a role in chronic pain pts. It allows people to have a life. Best of luck